Amy and Friends
Our group was formed to facilitate the support of children and families suffering from Cockayne syndrome (CS). Our group consists of CS sufferers, their parents and siblings, their extended families, family friends, representatives from medical disciplines, non-medical therapists and other interested parties.
Helen and Douglas House
Helen & Douglas House has the time and expertise to care for children and young adults with life-shortening conditions and support their families. The two hospice houses offer specialist symptom and pain management, medically-supported short breaks and end-of-life care, as well as counselling and practical support for the whole family.
Helen House opened in 1982 as the world's first children's hospice. Douglas House opened in 2004 specifically for young adults aged 16-35.
ROSY - Respite nursing for Oxfordshire's Sick Youngsters, is an organisation that raises awareness of the need for respite nursing and funds to boost the extremely limited resources of Oxfordshire's Children's Respite Nursing Team. The team offers respite nursing to terminally, acutely, or chronically ill children and babies in their homes.