Who are Rosy?
Rosy (Respite nursing for Oxfordshire’s Sick Youngsters) is a charitable support group operating under the umbrella of the Oxfordshire Primary Care Trust Charity that is dedicated to the provision of additional respite care to Oxfordshire’s sick youngsters who are nursed at their own homes. It is often difficult to contemplate, but some children are born with life limiting or chronic conditions and others develop them early in their lives. Most can be nursed at home, it is what their families want, for it is often better for the children to be with their loved ones, their own pets, toys and familiar surroundings but this need places an enormous burden on the families. The demands on the National Health Service, often victim of its’ own success, mean that support to these families is understandably limited; this is where Rosy comes in. Rosy was formed in 2002 by Bev Wilson, then a Respite Nurse, and a close circle of friends to provide additional nursing, specialist equipment and additional support in times of great need. Her work continues...
At present we provide the funding for ten nurses, medical and sensory equipment and specialist toys, a limited counselling service and assistance to support a leisure facility for the sick youngsters and their siblings. As you will appreciate, the three hours per week that the nurses currently provide to most of the families barely gives the carers of our sick children an adequate chance to relax from the extreme stress of caring for a sick child and little chance to enjoy the normal family life that most of us take for granted.
Our ambition is to
• At least double the availability of a 'relaxation' period for carers.
• Equip the nurses and homes with the appropriate specialist medical equipment.
• Provide suitable sensory equipment / toys for those children who can benefit from them.
• Enable the carers to relax with others who have similar problems so that they can share experiences and realise that they are not alone.
• Support the siblings of the sick children in any way we can for they are frequently the 'forgotten ones'.
In the next three years we need to consolidate finances for our 10 nurses, ( 3 full -time and seven part-time) to meet the immediate respite needs of our children and their families (currently 72). If further finance becomes available we want to provide some night time cover, an area in extreme need. In addition to those we currently help, we have identified a further 150 or so families in Oxfordshire with critically ill children at home who would benefit from respite nursing but whose children don't quite meet the extremely rigorous criteria necessarily imposed in deciding who is eligible for respite care.
We also need to provide funds for the purchase of medical and specialist sensory equipment and toys; the budget for the intended number of nurses is approaching £300,000 per annum. However in view of the difficulty in employing and retaining such skilled carers we have carefully matched our funds to meet the immediate needs and have an immediate target of fully funding ten nurses for a minimum period of three years, plus their associated equipment. i.e.
• 10 Nurses £210k (3 full time + 7 part time)
• Equipment £20k
• Miscellaneous Services £5k
• Contingency for Emergency Service £5k
Total £250k per annum None of the ROSY Committee receives a salary or expenses for the work they carry out on behalf of ROSY.
Find out more about Rosy by visiting their website - Rosy